#WeekendCoffeeShare -16/04/2016

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If we were having coffee, or some of my banana, coconut and pineapple smoothie which I love so much, with rocky road Rice Krispy Cakes which my daughter made and will offer you (see above) I’d tell you that the weather in Wales has been a bit weird this week. Incredibly changeable. I woke up early for taking my daughter back to school after the Easter break on Tuesday to thick fog. It looked like something out of a horror film. By the afternoon, when I collected her from school, it was hot and sunny like summer! My week has also mirrored the weather, it’s been very changeable.

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If we were having coffee, I’d tell you that Tuesday, despite being a back to school day, was probably the best day my daughter and I have had in a long time. Monday night, my daughter was really upset at the thought of going back to school, so I told her that we could watch Star Wars – The Force Awakens as soon as she got home from school, to help cheer her up, and give her something to look forward to. It worked, she seemed a lot happier, and as soon as I collected her from school on Tuesday, she said, “I can’t wait to see Star Wars!”, and practically skipped the whole way home.

We absolutely loved Star Wars, it was amazing, and it was so great to finally see it, given that every single time I had booked to go and see it, since December, my daughter or I were really very poorly. I had pleurisy, and my daughter had tonsillitis and then a throat infection! It was like some sort of Star Wars curse. Our faces while we were finally watching it were the definition of colon, capital D, 😀 😀 and I think waiting so long to see it made it even better. I love Rey, she’s so cool. I’ll probably write a post on it or do some fan art in the near future.

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After my little one had gone to bed, I played Rainbow Six Siege with my Xbox friend. We had so much fun, and the game is even better than I expected. I was so happy, and felt so much better mentally, than I had felt for a long time. I always have so much fun playing with him.

If we were having coffee, I’d tell you that the rest of my week wasn’t all that great. Walking my daughter to school everyday takes a lot out of me, as if, it’s more activity than I am capable of, and despite doing it every single day my body never gets used to it. During the two week school break, I was more productive, able to do more art, and writing here on my blog, and it felt like it wasn’t that much effort. I was able to have a lot more fun because I wasn’t expending ALL of my energy walking my daughter to school. I have been diagnosed with Chronic Fatigue Syndrome, and suffer incredibly bad tremors, which means my legs and arms feel like I’ve walked a marathon even when I do small amounts of activity. As I had a two week break from walking to school, going back to not being able to do much, and struggling so much with my tremors and pain that I literally couldn’t do things was incredibly hard and difficult to deal with. It upset me. It’s not even that far walking my daughter to school. It’s incredibly frustrating, as I type this, it feels like it’s so much effort, and that I have barely any energy left and I’m in agony.

It’s not all bad though, it’s something I just have to deal with, and it makes days like Tuesday even more special to me. Special days still happen, and those special days give me every reason to live and to deal with it. Playing Rainbow Six Siege has helped a lot, we’ve played a few times this week and it’s cheered me up. My friend WeeGee over at How to Eat an Elephant has also been incredibly supportive along with some of my other Facebook friends and my mum.

I hardly talk about my physical issues, because I like to pretend they don’t exist. I dislike the term “Chronic Fatigue Syndrome”, because it feels as though it’s a term for “You have medical issues, but we have no idea why”, and as someone who always Googles anything that pops in my head that causes me to ask why, it’s difficult to accept that there is no answer to my “But why do I even have this? And Why does it happen?”.

I was a little upset, but I am okay, and I have a relaxing weekend planned with my daughter which includes painting and watching Star Wars again, before I have to do it all over again on Monday.

So, hows your week been? Fancy joining in the coffee share? Head over to Diana at Part Time Monster’s blog to take part.
Hope you all have a great weekend.

Rhio.
Oh and if Safari could stop changing my name to Ohio causing me to have to edit my blog every single time I post, that would be great, haha.

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30 replies

  1. So Ohio (I grew up there…), I mean Rhio, sounds good over all. I do have to say I would have a very hard time with something like Chronic Fatigue Syndrome. I have to be active all the time or I go bonkers.
    Last night I finally got to sit down and watch The Force Awakens. I liked it a lot, but it wasn’t my favorite Star Wars. Parts were great but parts were almost like a fan fiction version. Overall I really enjoyed it. I might do my Weekly Smile on it (Shhh, don’t tell anybody – I like to keep the smile a secret).

    I hope walking your daughter to school is a little easier this week and that in general you have a great week!

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    • Thank you so much.
      I think The Empire Strikes Back is my favourite or Return of the Jedi as that came out the same year that I was born, it’s a hard one to call. It was just so amazing to feel some of that amazement I felt when I first watched them when I was really young, and to be doing that with my daughter (After both our disappointments with the prequels) felt pretty special. It did manage to capture that magic of the original series, but I don’t think they could ever beat the originals.

      I used to have to be incredibly active too. I worked 60 hour weeks at work, I didn’t even have to, I always asked for extra work. I worked as a pub manager for a large chain here, which was a very active job, and when I was off work, I was still always doing something active. It all changed when I had my daughter, and I don’t know why. I did have glandular fever when she was a few months old, and a lot of people with CFS say that’s when things changed for them.
      I cope fine with it most of the time, I try and get on with things and forget it exists, it’s just hard when I have a break from the school run and realise that I can have a lot more fun. She starts high school in September and I expect she’ll soon be old enough to get there by herself. I will then hopefully be able to do more activities or work etc etc. 🙂

      Liked by 1 person

      • I was 12 when the first Star Wars movie came out. There was nothing at all anything like it, not even close. To say it blew my young mind would be an understatement. So, of course, the first one is still my favorite, for sentimental reasons if nothing else. But yes, the first 3 where much better than the prequels, except for the first prequel, which is by far my least favorite, the other two did grow on me. This movie seemed more like an introduction than a stand alone movie, so I’ll wait for the rest of them before I place any judgement on them all.
        If your daughter is like any of the girls I know, not only will she be fine walking to school on her own once she’s in high school, she’ll prefer it that way 😉

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  2. The weather has been a bit mad this week at the other side of the country (Norfolk) as well! I hate it when it’s really changeable makes me feel really unsettled. I love your Lego photos btw!

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  3. I’m so glad that you guys finally got to watch TFA and that you enjoyed it. Rey is definitely a good addition to the multiverse. 🙂

    Sorry to hear that your illness is in full force now that school has started again. ❤

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    • I thought Rey was great for my daughter to watch too. I’m so glad she was the special one! I actually bought myself a Lego set with a Rey minifigure in it to cheer myself up, think I’ll put it together later 😀 Thank you ❤

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  4. It snowed just two days ago here. Darn weather, now it is nice and sunny. Glad you finally got to see Star Wars, it is so much fun! Also look forward to any fan art you do of Rey. Hope the walking gets a little easier, cuz that chronic fatigue thing sounds absolutely miserable. And gosh those rocky road rice krispy cakes look amazing.

    Liked by 1 person

    • They taste pretty amazing too, she used her favourite chocolate! 😀
      I’ve been sketching since I wrote this, and it looks like I’m going to make a Rey and BB8 canvas 😀 hopefully Ill be able to paint it despite my shaky hands 😀 Snow? Wow. We haven’t even had snow this winter, it’s been the warmest winter we’ve had since I can remember.
      Thanks as always for the comment 😀 x

      Liked by 1 person

  5. That banana/coconut/pineapple smoothie sounds divine! and healthy too. Still haven’t seen TFA, must make an effort.

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    • It’s a really nice smoothie as it kind of tastes like a cocktail, I think it’s Pina Colada that has pineapple and coconut. As I don’t drink alcohol, I treat myself to super tasty smoothies. 🙂
      TFA is such a good watch. Highly recommend it 🙂 Thanks for the comment. 😀

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  6. I was going to confess that I’ve never seen any of the Star Wars films but I thought it might ruin our friendship 😛

    Thanks for the shout out my lovely – sending huge hugs, and jelly tots and lots of love xoxox

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  7. Sorry to learn you suffer from a chronic disease. It is no fun and It sounds like you have handle onit. It still hurts even if no one else feels like you do.
    Star Wars wasn’t about when I was still watching TV or movies. Some day I may watch it. Buck Rogers was a favorite comic as I grew up. Have stress free day!

    Liked by 1 person

  8. I love Rey in Star Wars too. I thought Daisy Ridley did such an excellent job. I’m sorry to hear of your chronic fatigue. Is there anyone in your daughter’s class living nearby? Maybe you could split walking duty so you would only have to walk her every other day. Hope you have a good week.

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    • Unfortunately not, most of the people that go to the school live outside the area. I even asked if they could drive a bus past our house to pick her up but they said they didn’t have enough room, and as it’s really not that far they wouldn’t consider it.
      My daughter loved Rey so much, it was great to have such a strong female lead and yes, the actress did an awesome job at portraying her. Such an interesting character! Hope you have a great week too. Thanks for the comment 😀

      Liked by 1 person

  9. Hi Rhio! I don’t think I’ve ever commented on your posts before but I really enjoy reading them and I particularly love the cool pictures that you add 🙂 The lego people in action are awesome (especially the panda – I always get distracted by the panda! Hehe)
    It sounds like you had a great week despite the chronic fatigue… I loved TFA and I have to admit that I’ve watched it a few times since it came out already! Hope you had a great weekend to round off the week and that your week ahead is even better!

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    • The panda suit guy is my absolute favourite. I have a thing for pandas too! 😀
      We have now watched TFA twice, and will again when we get the bluray! Haha.
      Hope you have an awesome week 🙂

      Liked by 1 person

      • Nice! All this talk about TFA makes me want to watch it now! I think I just might do that after work today 😉 I hope you have an awesome week too – can’t wait to read about it later over coffee! 😀

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  10. Hey there, o am glad that you had some time off from walking and like the others I am sorry about your illness. But being sorry doesn’t change it for you I guess. I received a lot of homeopathic medecin a kid got weird problems (migraines, over sensitive and swollen fingers, not being able to sit right after I fell on my butt…) but also for making birth easier (I have a GP who also is a homepath). So I thought maybe there is some homepathic treatment that might help you somehow. I know many people don’t believe but one can always try.
    Ah sorry for all this commenting space taken up now…
    Have a wonderful and battery recharging Sunday!

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  11. The weather has been changeable here too, hail one minute, sun the next! Sorry to hear you suffer from Chronic Fatigue Syndrome is that the same as ME, my brother’s partner has ME, so I know how debilitating it can be. Glad to hear you and your daughter enjoyed star wars. Hope you have a good week coming, and the walking will be ok.

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  12. We can’t get enough of TFA! We bought a digital copy and my little guy hasn’t wanted to watch much of anything else but that during screen time.

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  13. Hi Rhio,
    So sorry to hear that you have Chronic Fatigue. I have an auto-immune disease which breaks down my muscles but is in remission thanks to medication. I understand that fatigue which I’ve heard described as extreme fatigue. I had occupational therapy to help minimise the amount of energy used to complete tasks, which was very useful but I’ve also found that doing small amounts of movement/exercise is better than none if you can manage it. I have not followed my own advice lately as I’ve been writing for the April Challenge. The other thing is don’t be afraid of using equipment to help you get around. A walking stick will alert people that you’re having difficulties and it might stop some from walking into you. I have avoid other equipment myself but I shouldn’t and I know it.
    I do understand what it’s like trying to manage all this with kids so you’re in my thoughts
    xx Rowena

    Like

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